The May-July 2018 edition of our newsletter, Dripline, is out now and available here or from our Dripline page. You can read Fay’s story, enjoy Jordan’s fabulous Starlight Foundation Wish vicariously, and envy Laurie his cruising and fishing in the waters around Vancouver Island. A new young member writes of the limitations of being unable to eat as well as …
The February-April 2018 edition of our newsletter, Dripline, is out now and available here or from our Dripline page. Issue 23 gives thanks to Sally, who has been our designer for the past 13 issues. In this issue, read in detail about the daily tasks of caring for a baby on HPN (Home Parenteral Nutrition), written by mother Shannyn; read Emily’s …
The November-January 2018 edition of our newsletter, Dripline, is out now and available here or from our Dripline page. Read about Jodie’s life on HPN; Gillian’s HPN routine adjustments for Quality of Life purposes; sadly PNDU has lost another member, Celena, whose HPNer friend has written a beautiful tribute; read about PNDU activities, especially around HPN Awareness Week last October; the results of an …
PNDU is excited to share this comprehensive and valuable resource produced by the French support group for people on HPN and HEN (La Vie par un Fil https://www.lavieparunfil.com/). We believe it may be of great value particularly in relation to the emotional, psychological and behavioural aspects of young people on HPN transitioning to adulthood – a …
The August-October 2017 edition of our newsletter, Dripline, is out now and available here or from our Dripline page. Learn about how Talon is progressing after his organ transplant, about the exciting inaugural SNUG family camp for our junior HPNer families at Myuna Bay, access PNDU’s new travel insurance information sheet, buy an individually hand-crafted PNDU recipe book made by one of …
Home Parenteral Nutrition (HPN) is a vital life saving therapy required by around two hundred and seventy adults and children living at home in Australia and New Zealand. The 15th to the 21st of October 2017 is HPN awareness week dedicated to providing friends and family with a small peek into what goes on behind …
PNDU has put together a short information sheet about insurance to assist HPNers wishing to travel (especially overseas): why insurance is needed; the importance of clarifying what you’re covered for; and some tips for getting cover. Located on our Travel page, we hope you find it helpful. And please, if you have a good travel insurance …
The May-July 2017 edition of our newsletter, Dripline, is out now and available here or from our Dripline page. This issue is packed with a variety of reading: Justine at work, nursing, whilst infusing with PN; members’ comments about experiences in hospital and trying to access the Australian NDIS; latest research on preventing the formation of biofilm; PNDU in Perth for the …
People living with Intestinal Failure can at any time need a toilet urgently and/or may need the space and privacy of an Accessible Toilet. So we combined the two needs into one PNDU Toilet Card. As with our PNDU Restaurant Card for members, there is no legal obligation for any business or premises managers to …
The February-April 2017 edition of our newsletter, Dripline, is out now and available here or from our Dripline page. Sit back, relax and read about holidays camping on Bribie Island, glamping at Patonga and bussing ‘out yonder’; read about the joy of swimming for 2 of our young members as well as PNDU’s involvement in various activities; learn about research into …