All the latest news for HPNers. Note that we periodically post members-only content. Join us to access this content, and much more.
The May-July 2018 edition of our newsletter, Dripline, is out now and available here or from our Dripline page. You can read Fay’s story, enjoy Jordan’s fabulous Starlight Foundation Wish vicariously, and envy Laurie his cruising and fishing in the waters around Vancouver Island. A new young member writes of the limitations of being unable to eat as well as …
“HPN: our food for strength” HPN Awareness Week is a wonderful opportunity each year for HPNers and carers, HPN hospitals and industry to not only celebrate this life-saving yet complex life-support therapy keeping many of us alive, but also, as the name suggests, increase understanding and awareness right where we are amongst those most important …
As PNDU members, whether you’re an HPNer, carer, clinician, or industry employee, we welcome you to nominate for our PNDU Awards 2018. Is there someone you think does a marvellous job when it comes to HPN care or PNDU? Here’s your opportunity to let them know! This is PNDU’s 5th year of bestowing awards on …
2018 AuSPEN HPN Consumer Workshop – PNDU Annual Social Gathering Sydney 1 & 2 December 2018 Plan now to be there! AuSPEN HPN Consumer Workshop, Saturday afternoon 1st December 2018 Open HPN consumers and carers AuSPEN’s program includes presentations on IF ‘down under’, loss of central venous access, Revestive, working with your HPN team, lipids in PN, …
The February-April 2018 edition of our newsletter, Dripline, is out now and available here or from our Dripline page. Issue 23 gives thanks to Sally, who has been our designer for the past 13 issues. In this issue, read in detail about the daily tasks of caring for a baby on HPN (Home Parenteral Nutrition), written by mother Shannyn; read Emily’s …
The November-January 2018 edition of our newsletter, Dripline, is out now and available here or from our Dripline page. Read about Jodie’s life on HPN; Gillian’s HPN routine adjustments for Quality of Life purposes; sadly PNDU has lost another member, Celena, whose HPNer friend has written a beautiful tribute; read about PNDU activities, especially around HPN Awareness Week last October; the results of an …
PNDU is excited to share this comprehensive and valuable resource produced by the French support group for people on HPN and HEN (La Vie par un Fil https://www.lavieparunfil.com/). We believe it may be of great value particularly in relation to the emotional, psychological and behavioural aspects of young people on HPN transitioning to adulthood – a …
It was great for PNDU to be there, be seen, reconnect with PNDU friends and supporters (clinicians and industry) and meet other HPN clinicians. Thank you AuSPEN for again allowing PNDU to exhibit for free at this important event. Here’s Karen and Chris’ time at the conference in pictures … PNDU on display (Photo courtesy …
PLEASE NOTE: THIS EVENT HAS BEEN CANCELLED. PNDU is bringing together current members and new HPN families for a relaxed time of meeting and chatting about life on HPN in a non-medical environment. This is just for HPNers (past and present, adults and kids) and their families, so there will be no giving/receiving of medical …
In recognition of their generous donation of PNDU’s website design, Miranda and Karen said thank you to Orange Line and presented directors, David and David, and the design and technical team, Carina, MJ and Donna, a Certificate of Appreciation in early January 2018. This website is something we are very proud of and grateful for. It …